Genetic Alliance is one of the world’s leading nonprofit health advocacy organizations. We engage individuals, families, and communities to transform health. Trying to find information and interventions for disease, searching for health information, and/or trying to find ways to participate in research is difficult. We create ways to make it easier to find or build solutions in health services and research.
Our network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations. The network is a dynamic and growing open space for shared resources, creative tools, and innovative programs.
Since 1986, Genetic Alliance has defined the intersection of health and genetics. Originally founded as an alliance for support groups, our work has evolved along with the growing health advocacy movement and the rapid advancement of genetic technology. While our roots are in genetics, we recognize that meaningful solutions that improve health must be multidisciplinary. To that end, we apply solutions in health and disease, practice and prevention, and on the local and global level. Through our broad and diverse partnerships, we have created a dynamic network that serves as an open space for sharing valuable resources, creative tools, and innovative programs.